Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Family & Friends

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Hard to Diagnose.

06/2004 | 17 Comments

Is there even one person out there who DIDN'T know what was wrong from the very start? I have seizures, usually, in my sleep. It has been 12 years now...
CARBATROL & TOPAMAX

06/2004 | 3 Comments

my son stopped his meds and sure enough had another. he said they make him spacy anf friends and teachers agree. he is forgetful and cannot...
three doses of tegertol xr

06/2004 | 3 Comments

my doctor has told me to take three doses of tegertol xr. And I have started to do this. Tegertol xr is a twelve hour medicence but I am now taking it...
Memory at Work Bad

06/2004 | 4 Comments

I'm trying to respond to the above mentioned topic but I'm new to this and somehow I started a new discussion!Anyway, I'm wondering if your memory...
weight gain

06/2004 | 6 Comments

My son was diagnosed 6 months ago with complex partial epilepsy due to Strep B meningitis at birth.(he's 7 now) He was started on Tegretol. He has...
epilepsy in children

06/2004 | 6 Comments

i have a 10 yr old daughter that has uncontrolled epilepsy for the most part we have been able to subside them but she has night time grand mal tonic...
seizures

06/2004 | 0 Comments

i was diagnosed just this past week with epilepsy and i told my nieces and now they act like i'm contagious and won't listen to me or act like they're...
New to Siezures

06/2004 | 6 Comments

Hi All, i too am new to seizures, i have had them knowingly for 6 months, but now that i look back i've had them for years. but the doctors don't know...
MEDICINE - FELBAMATE

06/2004 | 3 Comments

MY GRANDSON HAS LENNOX GAUSTAUT SYNDROME. EVERYTHING HAS BEEN TRIED INCLUDING COMPLETE SPLIT OF THE BRAIN AND NOTHING HAS HELPED. THE DOCTORS ARE NOW...
Need help/advise with seizures

06/2004 | 4 Comments

About 5 years ago i was a heavy drug abuser. Ecstacy (MDMA), LSD, Marijuana and LOTS of Crystal Meth. On 2 seperate meth binges i remember taking so...
New to Epilepsy

06/2004 | 3 Comments

Hi. My 6 year old son was recently diagnosed with epilepsy. I feel confused and alone because I don't know anyone else with a child with epilepsy. My...
photosensitive diagnosis 7 yr old?

06/2004 | 19 Comments

Hi,I,m a new member neurotic mom of a seven yr old girl.I was falling asllep one night, she was nest to me, I hada "normal Jerk". when this happened...
involuntary noises or facial expressions

06/2004 | 3 Comments

If I am concentrating hard or stressed out I tend to make noises. Deep in my throat. I am not even aware of them. My husband will ask if I am ok. Now...
cope

06/2004 | 0 Comments

i an new here and i had a question. my husband has edopathis seizures and we tried to claim disability but because he worked they won't give it to him...
vns

06/2004 | 1 Comments

Is there anyone with vns implant? what are the side effects that you have had and how are you doing?
Seizure???

06/2004 | 1 Comments

My 9-year old was diagnoised with Epilepsy in Dec. 2003. I am new to watching for more seizures because it is the staring kind. I was wondering if...
Advise Sort

05/2004 | 25 Comments

Hi, I was first taken in a seizure 30-Jan-00 but never knew what it was, no doc has diagnozed me as having epilepsy. Yet I started taking my medicine...
parents with epilepsy?

05/2004 | 5 Comments

Hey...I'm new, I was wondering if there's any kind of support group anyone knows of for kids (teens especially) who have parents with epilepsy? I...

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