Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Epileptic death

02/2018 | 4 Comments

Good night I have a burning question, my cousin age 33 died age from a seizure face down in her bed, just this past Sunday, blood on pillow urine on...
Complex partial seizures

02/2018 | 2 Comments

Hi, I'm new to this. Anyways, I was diagnosed with epilepsy when I was 16, i am 28 now. I was going into work the one morning over the summer, and...
New on here

02/2018 | 1 Comments

Hi everyone, I am new on here but sadly not new to living life with epilepsy. I had my first seizure at the age of 11. I was diagnosed as having grand...
Faking Seizures

02/2018 | 3 Comments

My mother-in-law has seizures every few months were she lays in bed shaking her head arms and legs. then she passes out right after and is still for a...
Alcohol induced Seizures

01/2018 | 1 Comments

Hi Everyone, This is my first time writing about my experience with seizures. Growing up I never had signs of epilepsy and never thought that...
The day that everything changed

01/2018 | 0 Comments

I am 31 years old and was in an accident in my way home from Germany, I was a paratrooper. I don't remember much about what happened, just stories I...
Does low iron cause seizures?

01/2018 | 1 Comments

I had 2 seizures in 2017, it transpires i had very low iron, two doses of intravenous iron and i feel so much better, but I've lost my driving license...
Reflex Epilepsy from Heat!

01/2018 | 4 Comments

Hello Everyone! My name is Mike! I've had Epilepsy for about 23 years now, since I was 10 and a half years old. We don't completely know what caused...
My 15 year old daughter

01/2018 | 1 Comments

Hello, my daughter had her first seizure at 9 and her second at the age of 13! I am so confused because her first eeg shows some abnormal activity and...
Grand-mal seizure with speech arrest

01/2018 | 1 Comments

Okay I'm 19 years old. In 2011, I first recognised this speech arrest in me. It's like when I read or study, I feel something abnormal with mouth...
Anxiety and Epilepsy

01/2018 | 1 Comments

I am a 30 year old woman living with epilepsy. Recently I have had a few other health issues as a result of my epilepsy which has increased my anxiety...
CTE and Epilepsy

01/2018 | 3 Comments

I have been living with epilepsy since age 16. I collapsed following a football workout and woke up in the hospital that afternoon learning I had a...
Total Recovery

01/2018 | 0 Comments

Hello I was doing a little research online and came across this sight and thought I should share my story. As a infant I suffered from heat stroke of...
I think my 28 yo son may have this

01/2018 | 2 Comments

My son has a experienced some major traumatic events in his life including being stabbed five times then two years later he was shot in the chest and...
Hello everyone I'm new Member

01/2018 | 0 Comments

Hello everyone I am a new Member. Because not understand the activity forum page for how people are looking forward to help. Thanks
When i was 12

01/2018 | 0 Comments

I believe when i was 12 a goal post fell on my head, not a full size one but a 7 a side one. I believe this was the cause of my epilepsy but the thing...
Best choice ever! The Debsquared Story

01/2018 | 2 Comments

When I was an infant my parents found me in my crib having some type of seizure. It was not diagnosed as epilepsy. At the age of 16, I was in a major...

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