Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Hopes to be seizure free

09/2017 | 7 Comments

Hi all, my names gabi I live in Boca Raton Florida and attend FAU. I'm 23 and have been living with epilepsy since I was eight. I was originally...
Lamictal level

09/2017 | 2 Comments

Hello I am taking lamictal XR 300mg. I had a blood test done and the doctor said that everything was ok. He just looked at the results fast and said...
My story

09/2017 | 1 Comments

I am a graduate student pursing a degree to become a school counselor, LPC (license practicing nurse), Sac, student assistant coordinator, and a drug...
I wanted to share my story..

09/2017 | 2 Comments

My name is Dillon and I have grand mal seizures. My epilepsy wasn't something I was born with, it's a result of a head trauma to my left frontal lobe...
4 weeks now

09/2017 | 0 Comments

Hi everyone I'm Cynthia I'm 21 and just got diagnosed with epilepsy. It's very hard for me at the moment. I can't seem to find help I can't get a...
Photosensitivity

09/2017 | 3 Comments

Hi everybody, I m new on this chat and I I m greatful to be here :) I want to talk to you about something called photosensitivity. Has anyone else...
C-section or Natural Birth?

09/2017 | 3 Comments

At age three i was diagnosed with epilepsy. I am currently 21 and 7 months pregnant with my first child. If someones opinion, which is better for a...
Living with epilepsy

09/2017 | 1 Comments

Hello everyone, My name is Bianca I am 27 years old, this is my story. I was 8 years old when I had my first seizure. I remember going to a mini...
Seizures?

09/2017 | 1 Comments

Hey everyone i am new to this forum because i don't really know where else to go, Im 20 years old tall and pretty fit but ive been having seizure like...
Now at 38 from a Teenager.

09/2017 | 2 Comments

Back then it bothered me. I was a teen. Now, today it still does because I am afraid to talk to any woman. Will she freak out when I tell her about my...
Seizures not really under control

09/2017 | 2 Comments

I have seizures once every 6-9 months, they come without warning I'm on 1000mg Divalproex Acid, 800 mg carbamazepine, 150mg lamotrigine. I'm in bed...
Seizures after Gulf War

07/2017 | 1 Comments

Just thought I would share my story since I only have nocturnal seizures and they didnt start happening till after i got back from the Gulf War around...
Still Fighting Stigma

07/2017 | 4 Comments

I can't say my epilepsy struggle wasn't a difficult one. I had my first seizure at the age of 5, and since then, my religious family has treated me...
nana123

06/2017 | 0 Comments

Thanks for the good information.
Thank you

06/2017 | 2 Comments

Hello everyone Thanks for pick up me logged in. In a good forum.
Status elipiticus

06/2017 | 1 Comments

Hi, ive recently been diaagnosed with epilepsy, my first bout being life threatening se. I was driving on the thruway, woke up a week later strapped...

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